Monday, March 23, 2009

Tuberous Sclerosis Research Program



I need your help.

As many of you know my 12 year old son was born with Tuberous Sclerosis Complex and as a result has epilepsy, autism and cognitive delays. In February I went to Washington DC for the third year to meet with our Minnesota legislators and also North Dakota, Oklahoma and Arkansas to request continued funding for Tuberous Sclerosis Research Program through the Department of Defense. The Department of Defense has a dedicated program to fund medical research. This IS NOT an earmark. The research that the TS Alliance is doing with the funds is not only going to impact those affected with Tuberous Sclerosis it will impact; Epilepsy, Autism, Diabetes, Cancer and Arthritis.

It need all of you to contact at least one of your legislators. Believe me, their offices listen to each and every phone call and look at every email.

If you are emailing please put Tuberous Sclerosis Research Program in the subject and encourage them to support the $10 million request through the Department of Defense medical research program for Tuberous Sclerosis Complex Research.

Check out the link on the right if you need to find your legislator

Thank you for your support of something that is very near and dear to my heart!
Missy

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